Each year about 4,000 children and teens in the United States are diagnosed with a brain or spinal cord tumor. The illness and its treatment can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this difficult time. It includes descriptions of the newest treatments, such as computer-assisted surgery, stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances. Effective ways to form a partnership with the medical team are provided, as are resources for medical information, emotional support, and financial assistance. The poignant and practical stories from more than 100 children with brain or spinal cord tumors and their parents show the personal side of diagnosis and treatment. Parents who read this book will find simply explained medical facts, advice to ease their daily life, and tools to be a strong advocate for their child.
"For parents, there are few childhood diagnoses more frightening than a brain tumor. This is exactly the book to have in that situation. . . . It maintains a nice balance between providing solid clinical information and sharing stories of emotional support. . . . Highly recommended for all public and health-related libraries." --"Library Journal," starred review"The authors weave together the medical information alongside practical tips, strategies for coping, and firsthand testimony from others who have walked this path. This is a wonderful resource for newly diagnosed families or those who have been managing a brain or spinal cord tumor for some time." --Wade Iwata, LMSW, OSW-C, Children's Brain Tumor Foundation"This book makes a great reference and source of supportive information for caregivers. . . Appropriate for hospital libraries, patient information centers, public libraries, and personal use. RECOMMENDED for a library collection." --William H. Anger, Jr., nahrs.mlanet.org
Tania Shiminski-Maher, a pediatric nurse practitioner, has worked for more than 30 years with children and teens who have brain and spinal cord tumors. She lives in New York City. Catherine Woodman is a physician who has published peer-reviewed papers on ethics of pediatric research and late effects of treatment for childhood cancer. She lives in Iowa City, Iowa. Nancy Keene is the author of several books, including "Chemo, Craziness, and Comfort";"""Childhood Cancer"; "Childhood Leukemia"; "Educating the Child with Cancer"; and "Your Child in the Hospital." She lives in Bellingham, Washington.